October 1st 2016
Josh and Brian
Sponsor Brian as he competes in Ironman
to raise funds for FD research & treatment in honor of
his cousin, Josh.
My name is Brian Levine and I'm competing in Ironman Maryland, a 2.4
mile swim, 112 mile bike and 26.2 mile run, on October 1, 2016 to
raise awareness and funds for the treatment and research of an
exceedingly rare disease called familial dysautonomia (FD).
What Is FD?
FD is a complex and debilitating genetic disorder that affects every
involuntary bodily function including breathing, blood pressure
control, swallowing, and perception of pain and temperature. Because
the population suffering from this disease is so small, the families
and friends of people with FD are challenged to tirelessly raise
funds to push treatment and research toward a cure.
Who Is Effected?
FD afflicts approximately 350 people worldwide, including my cousin
Joshua Kietz. Josh is kind, funny, loving and a HUGE fan of the band
KISS! However because of FD, Josh is forced to rely on the help of
others to perform many every day functions that many of us take for
Please take the time to get an idea of how inspiring and brave Josh
and the other individuals effected by FD are by watching this short
I swim, bike and run to honor Josh Kietz, the other children
diagnosed with FD, and the families that this disease has touched.
To raise awareness for a disease that most people have never heard
of before. To raise money for a foundation that can make a
here to sponsor me now.
Donate To Support Research and Treatment
The Dysautonomia Foundation was founded in 1951, shortly after the
disease was first identified in the United States. The Foundation is
a 501(c)3 nonprofit public charity that funds the world’s only two
FD treatment centers. As a result of the work of these centers,
quality of life and life expectancy for people with FD has improved
Treatment is both supportive and preventative. The primary mission
of the Foundation and treatment centers is providing medical care
that leads to improved quality of life and increased life expectancy
for patients with FD
Thank you SO much for your generous donation to support the
Dysautonomia Foundation. It is with your love, support and
generosity that we can continue to raise awareness for what FD is
and raise funding to continue to research this disease in search for
Brian and Josh
Sponsor Brian in Ironman Maryland!