latest news and updates on COVID-19 for the FD community

A condition most people

have never heard of.


Helping You Find Answers

As the leaders in FD treatment and research, we want to help you find answers. Learn about FD research, treatment options, and how we’re fighting FD together.

National Center for Biotechnology – Familial Dysautonomia articles

GeneReviews: Familial Dysautonomia

Dysautonomia Center at NYU

Dysautonomia Center in Israel


Genetic Screening

One of the most important ways we can create a world without FD is through genetic screening. The discovery of the FD gene ushered in a new era of carrier testing.


Because the FD gene is passed down in a recessive manner, most people carrying the FD gene do not know it.

For more information on genetic screening and to obtain testing, please visit the Jewish Genetic Disease Consortium, as well as


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