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A condition most people

have never heard of.

Resources

Helping You Find Answers

As the leaders in FD treatment and research, we want to help you find answers. Learn about FD research, treatment options, and how we’re fighting FD together.

 

National Center for Biotechnology – Familial Dysautonomia articles

GeneReviews: Familial Dysautonomia

Dysautonomia Center at NYU

Dysautonomia Center in Israel

 

Genetic Screening

One of the most important ways we can create a world without FD is through genetic screening. The discovery of the FD gene ushered in a new era of carrier testing.

 

Because the FD gene is passed down in a recessive manner, most people carrying the FD gene do not know it.

For more information on genetic screening and to obtain testing, please visit the Jewish Genetic Disease Consortium, as well as jscreen.org
 

Read the latest in Research and Clinical Care in Familial Dysautonomia

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Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

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Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.