“Making a Planned Gift is like planting a sapling. You may not be able to enjoy the benefits of yourself, but by planting the tree, you are leaving the world a better place for those who will come after you.”
We need your help to continue our important work ensuring more and better days for all those affected by FD.
Charitable bequests are a great way to give because they are easy to establish, cost you nothing today, and can offer significant tax benefits.
Estate gifts have funded research that has led to important break-throughs in our understanding of the FD gene and its effect on people, bringing us closer to our ultimate goal -- a cure for FD.
Meet Bea Klier
Bea recently celebrated her 102nd birthday. Bea's son Peter, a "math whiz," had FD (when it was still called Riley-Day Syndrome). For a long time she never had a will, but several years ago Bea met with an attorney to be sure that her assests will someday support the causes that are important to her, including the FD Foundation.
Meet Solange Landau
Solange's grandson Sam has FD. Grandmother and grandson live only blocks away from each other in Manhattan, and they enjoy going out on the town together. Solange generously supports the Foundation each year, and has arranged for a bequest from her estate that will continue to fund the Foundation's mission.
You, too, can make a charitable planned gift to the FD Foundation. Contact us to learn how.
Consider making a gift through your will, trust, retirement account or life insurance policy. Your gift today can make a meaningful difference in the future.
You can simply include language in your will or trust specifying a gift be made to the FD Foundation as part of your estate plan. Gifts can be designated for a specific purpose, such as research, or can be used as needed to support the ongoing work of the Foundation. You can give a specified amount of money, a percentage of your estate, a residuary or a gift contingent upon certain events.
Once you notify the Foundation of your intent to give through a bequest, we will acknowledge you as a member of the Forever Devoted planned giving recognition society.
If you have stock that has grown in value, you can donate it to the FD Foundation and receive a charitable deduction for the current value as well as eliminate capital gains tax on the appreciation.
When left to individuals orther than a spouse, your retirement plan assets may be subject to taxes. Instead, consider using your retirement plan assets to make gifts to tax-exempt charitable organizations such as the FD Foundation. Alternatively, you can name the Foundation as a partial beneficiary, along with family members, or as a contingent beneficiary.
You can designate the FD Foundation as a beneficiary, partial beneficiary or residual beneficiary by contacting the administrator of your poluc and requesting a change of beneficiary form, completing the form and returning to the administrator.
Consider naming the FD Foundation as a beneficiary, partial beneficiary or contingent beneficiary of one or more accounts.
Did you know...If you are 70 1/2 years or older, you can give up to $100,000 per year from your IRA directly to a qualified charity such as the FD Foundation without having to pay income tax on the money. This "Rollover" gift can satisfy all or part of your RMD (required minimum distribution).
If you would like more information about making a planned gift to the FD Foundation, please contact Lanie Etkind, Executive Director, at firstname.lastname@example.org or 212-279-1066.
If you have already made provisions for the FD Foundation in your estate plans, please let us know! We would like to acknowledge your support and welcome you into the Forever Devoted Society.
One of the most important legal documents you will ever need is a will. It directs how you wish your assets to be distributed after you've passed away. Just as important, a will is a reflection of your life. It reveals who and what mattered most to you. It's the final gesture by which you will be remembered.
A well-planned will is a gift to your family members, as it relieves them of having to guess your final wishes during their time of grief, and it ensures they are takne care of in the manner you specify. When you provide for an organization like the Familial Dysautonomia Foundation in your will, you also create a legacy of tzedakah and help build a better world through health care, medical research and advocacy for people affected by FD today and in the future.
If you already have a will, make sure it's up to date. Consider reviewing your will following major life events like births, deaths, changes in marital status, etc. Contact your estate planning attorney to make any changes.
Want to add the Familial Dysautonomia Foundation to your existing will? Contact us at (212) 279-1066 or email@example.com and we will provide you with the recommended language for your attorney.
When adding the FD Foundation to your will, living trust or estate plan, please share this suggested language with your attorney:
I give, devise and bequeath the sum of $ or percent of my estate or specific asset to the Dysautonomia Foundation, Inc. Tax ID # 13-6145280. The Dysautonomia Foundation is a charitable organization located in New York, NY.
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.