The Familial Dysautonomia Foundation will be Forever Grateful to the following individuals who have supported (or intend to support) our mission with a gift from their estate.

 

Lou Bacon Trust*

Anna Berstein*

Gladys Heyman Brown Rev. Trust*

Marion Brucker Legacy Trust*

M.I. Fischmann*

Estate of Bell Frechtel*

Sylvia Greenberg Revocable Trust*

Gladys Gropper*

Estate of Leo Gropper*

Gertrude Hornstein*

The Yacob Khan Estate*

Beatrice Klier

Ann Laderman

Solange Landau

Frieda Makovsky Englard Estate*

Marion Matzkin*

Stanton and Peggy Miller

Rita Nuger*

Arlene Osoff*

Carolyn Redell*

Stanley & Estelle Rosenzweig Trust*

Daniel Rothstein*

Marvin W. Sage Trust*

Thelma Sassoon*

Ruth Scharf

Estate of Edwin Shapiro*

Estate of Leo A. Shiffrin*

Herbert L. Solomon Trust*

Helen Strauss*

Estate of Monique Uzielli*

Lillian L. Zale Revocable Trust*

Estate of Lucille Zolty*

 

*Of blessed memory

 

Are you 

Make a bequest. Make a difference.

 

If you have included the FD Foundation in your estate plans, but are not listed here, please notify us. It would be our privilee to thank you and welcome you as a member of the Forever Devoted Society, which honors friends who are helping to ensure the Foundation's future. All legacy gifts, regardless of size, make a meaningful difference, and we are deeply grateful.

 

What's YOUR Legacy?

 

“Making a Planned Gift is like planting a sapling.  You may not be able to enjoy the benefits of yourself, but by planting the tree, you are leaving the world a better place for those who will come after you.”

 

Invest In The Future Of The Familial Dysautonomia Foundation

We need your help to continue our important work ensuring more and better days for all those affected by FD.

 

Charitable bequests are a great way to give because they are easy to establish, cost you nothing today, and can offer significant tax benefits.

 

Estate gifts have funded research that has led to important break-throughs in our understanding of the FD gene and its effect on people, bringing us closer to our ultimate goal -- a cure for FD.

 

Meet Bea Klier

 

Bea recently celebrated her 102nd birthday. Bea's son Peter, a "math whiz," had FD (when it was still called Riley-Day Syndrome). For a long time she never had a will, but several years ago Bea met with an attorney to be sure that her assests will someday support the causes that are important to her, including the FD Foundation.

 

Meet Solange Landau

Solange's grandson Sam has FD. Grandmother and grandson live only blocks away from each other in Manhattan, and they enjoy going out on the town together. Solange generously supports the Foundation each year, and has arranged for a bequest from her estate that will continue to fund the Foundation's mission.

 

You, too, can make a charitable planned gift to the FD Foundation. Contact us to learn how.

 

Consider making a gift through your will, trust, retirement account or life insurance policy. Your gift today can make a meaningful difference in the future.

 

A Bequest In Your Will Or Trust

You can simply include language in your will or trust specifying a gift be made to the FD Foundation as part of your estate plan. Gifts can be designated for a specific purpose, such as research, or can be used as needed to support the ongoing work of the Foundation. You can give a specified amount of money, a percentage of your estate, a residuary or a gift contingent upon certain events.

 

Once you notify the Foundation of your intent to give through a bequest, we will acknowledge you as a member of the Forever Devoted planned giving recognition society. 

 

Other Ways to Give

Appreciated Stock

If you have stock that has grown in value, you can donate it to the FD Foundation and receive a charitable deduction for the current value as well as eliminate capital gains tax on the appreciation.

 

IRA, 401K or Other Retirement Plan

When left to individuals orther than a spouse, your retirement plan assets may be subject to taxes. Instead, consider using your retirement plan assets to make gifts to tax-exempt charitable organizations such as the FD Foundation. Alternatively, you can name the Foundation as a partial beneficiary, along with family members, or as a contingent beneficiary.

 

Life Insurance Policy

You can designate the FD Foundation as a beneficiary, partial beneficiary or residual beneficiary by contacting the administrator of your poluc and requesting a change of beneficiary form, completing the form and returning to the administrator.

 

Bank Account or Investment Account

Consider naming the FD Foundation as a beneficiary, partial beneficiary or contingent beneficiary of one or more accounts.

 

IRA Charitable Rollover

Did you know...If you are 70 1/2 years or older, you can give up to $100,000 per year from your IRA directly to a qualified charity such as the FD Foundation without having to pay income tax on the money. This "Rollover" gift can satisfy all or part of your RMD (required minimum distribution).

 

If you would like more information about making a planned gift to the FD Foundation, please contact Lanie Etkind, Executive Director, at letkind@famdys.org or 212-279-1066.

 

If you have already made provisions for the FD Foundation in your estate plans, please let us know! We would like to acknowledge your support and welcome you into the Forever Devoted Society.

 

YOUR WILL: A Reflection Of Your Life

One of the most important legal documents you will ever need is a will. It directs how you wish your assets to be distributed after you've passed away. Just as important, a will is a reflection of your life. It reveals who and what mattered most to you. It's the final gesture by which you will be remembered.

 

A well-planned will is a gift to your family members, as it relieves them of having to guess your final wishes during their time of grief, and it ensures they are takne care of in the manner you specify. When you provide for an organization like the Familial Dysautonomia Foundation in your will, you also create a legacy of tzedakah and help build a better world through health care, medical research and advocacy for people affected by FD today and in the future.

 

If you already have a will, make sure it's up to date. Consider reviewing your will following major life events like births, deaths, changes in marital status, etc. Contact your estate planning attorney to make any changes.

 

Want to add the Familial Dysautonomia Foundation to your existing will? Contact us at (212) 279-1066 or letkind@famdys.org and we will provide you with the recommended language for your attorney.

          

Helpful Wording

When adding the FD Foundation to your will, living trust or estate plan, please share this suggested language with your attorney:

 

I give, devise and bequeath the sum of $         or          percent of my estate or specific asset to the Dysautonomia Foundation, Inc. Tax ID # 13-6145280. The Dysautonomia Foundation is a charitable organization located in New York, NY.

 
The FD Foundation does not provide legal or tax counsel and recommends all charitable giving decisions be made with the advice of tax professionals and legal counsel.