23rd Annual Golf Classic

Monday May 20, 2019

23rd Annual Golf Classic

The Dysautonomia Foundation is a 501(c)(3) non-profit organization that supports medical research and treatment for children and adults afflicted with Familial Dysautonomia (FD). FD is a Jewish genetic disease that is always life threatening and sometimes fatal. Those afflicted with FD can’t do a lot of things most people take for granted. They can’t feel heat or cold or pain. They lack even the most basic normal reflexes, and often experience severe cardiovascular, pulmonary, orthopedic, gastrointestinal and renal problems. Frequent hospitalizations and multiple surgeries are common. Crying without tears is one of the most striking symptoms of FD.

 

Our clinical research laboratory continues to unravel the mysteries of FD, allowing for a “personalized medicine” approach to patient care and an ongoing program of clinical trials for new FD therapies. Advances in clinical research have led to important breakthroughs in understanding the physiology of FD. Yet people with FD still face tremendous challenges, and much more work remains to be done in order to achieve our goal of a definitive therapy that will alleviate the severe symptoms of FD.

 

Your generosity is greatly appreciated. For further info on testing, treatment & research, please contact the Dysautonomia Foundation at 315 West 39th Street, Suite 701 • New York, NY 10018 212-279-1066 or info@famdys.org www.famdys.org

 

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* Tax deductible portion for golf is $330 and for dinner is $35.

Always Rising Above

Incredible teenagers and adults with FD tell us what it's like to face the challenge of living with familial dysautonomia. 

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