A Day of Connection for the FD Community


The Dysautonomia Foundation organizes, sponsors and hosts an annual gathering of FD patients, families, health care providers, researchers and other interested parties.


“FD Day” is an opportunity for collaboration, socializing, sharing, and-- perhaps most importantly for those affected with FD and their families--FUN


More than 150 members of the community participated in FD Day 2018·.


Join Us for FD Day 2019


On June 2, 2019, join us for our 34th annual FD Day conference at NYU Langone Hospital in New York City.


Learn about major breakthroughs in FD research, reunite with other FD families, and participate in exciting activities! Registration and programming details coming soon.


All those with FD are invited to participate in "The World Through My Eyes" photo competition.

Please submit your photo to norcll01@nyumc.org by May 15.

For more information, visit https://dysautonomiacenter.com/2019/04/25/10th-anniversary-of-the-fd-photo-competition/


Register for FD Day 2019

Fill out my online form.

Always Rising Above

Incredible teenagers and adults with FD tell us what it's like to face the challenge of living with familial dysautonomia. 

Stay Informed