latest news and updates on COVID-19 for the FD community

Patient Focused Drug Development (PFDD) Meeting

The FD Foundation will be leading a Patient Focused Drug Development (PFDD) meeting virtually with the FDA! This will be an opportunity for the FDA to hear the voice of the FD patient and learn about the challenges of living with FD and the critical need for better treatments.


Interested in participating?

On Thursday, July 16 the Foundation hosted an educational webinar for the FD community to learn how you can participate in the PFDD meeting. View the webinar recording and slides by clicking on the buttons below.


Click here to view the webinar



Click here to view the powerpoint


Are you a patient or caregiver and are interested in becoming a panelist/discussion starter? Register below for the PFDD to be considered for one of these interactive roles.


Have any questions? Contact the Foundation by emailing us


Fill out my online form.


Stay tuned for more details including information on how to participant in the event.



Click here to learn more about PFDD Meetings

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