The FD Foundation and the Dysautonomia Center at NYU Langone are hard at work planning our 37th annual FD Day, a virtual event scheduled for Sunday, June 12, 2022. You can anticipate hearing the latest updates on clinical care and scientific research from key members of the Dysautonomia Center team and leading scientists studying FD. You can also look forward to re-connecting (virtually, of course) with friends from the FD community worldwide. Programming details have yet to be confirmed, but we invite you to continue to check the FD Day site.
If you haven’t yet registered to attend, please visit https://fdday2022.vfairs.com to sign up today!
The Foundation also seeks sponsorships to underwrite the cost of FD Day. To view sponsorship opportunities or to donate, please visit http://weblink.donorperfect.com/fddaysponsor or to learn more, contact Lanie Etkind at letkind@famdysorg.
We encourage everyone to participate in the FD Day art competition, “The World Through My Eyes,” sponsored by the team at the NYU Dysautonomia Center. Visit https://dysautonomiacenter.com/2022/02/18/the-world-through-my-eyes-the-mitzvah-year for more details. Please send submissions to firstname.lastname@example.org.
We invite all families to send in a short video message telling us “We’re watching from...” to be included as part of the FD Day program. Your video should be filmed in horizontal format, no longer than 15 seconds long. Feel free to be creative with backgrounds, props, etc! Please submit the video here.
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.