We’re stronger together.

Come see for yourself.

Get Involved

The Dysautonomia Foundation hosts a variety of events and opportunities to get involved with our organization, meet other families affected by FD, and raise money to support our mission of treatment and research.

Join us!

Upcoming Events



Always Rising Above

Incredible teenagers and adults with FD tell us what it's like to face the challenge of living with familial dysautonomia. 

Stay Informed