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• External News Articles
  • A Pokémon Bar Mitzvah
  • ESPN Feature: The story behind the 'Jack Attack' fantasy football league
  • Rolling with the Punches Podcast: Yehuda Blonder Interview
  • BBC podcast: "How does my mind talk to my body?", with Lucy Norcliffe-Kaufmann
  • Newman Graduates Magna Cum Laude While Battling Rare Genetic Disorder
  • Local family advocates for genetic testing
  • Love, Hate, and fantasy football in the time of coronavirus
  • New City teen with rare disorder will donate gaming system to promote inclusion
  • Boy Aims To Level Playing Field For Disabled
  • Fortnite helps boy with rare genetic disorder
  • Jack Attack - New City boy with rare genetic disease finds ways to live with gusto
  • Box jump challenge launched in memory of Edmonton’s Stevie Schwartzberg
  • Montana State research team publishes research into rare neurological disorder

Dysautonomia Foundation Videos

The Dysautonomia Foundation has produced a variety of informational videos that will help you better understand FD, it's challenges and the work that is being done to benefit the FD community and all people at risk of carrying the FD gene. Our videos are also available on our YouTube channel; please share them with your friends and family.

 

FD Treatment - The Center of Progress Doctors and researchers describe their ongoing efforts to develop the best possible medical care and clinical research for people with familial dysautonomia. Length: 8 minutes - Format: YouTube Everyday Extraordinary (extended) - Help and Hope Parents, doctors and researchers join the remarkable people with FD featured in our Everyday Extraordinary video, and give an even greater perspective on the awesome challenges and incredible attitudes found within the FD community. Length: 9 minutes - Format: YouTube Everyday Extraordinary - Amazing, Inspiring, Courageous People living with familial dysautonomia (FD) are truly extraordinary. From the challenges they face to the remarkable attitudes they embrace, their stories are inspiring and heartwarming. Length: 7 minutes - Format: YouTube Tribute to Dr. Axelrod - 40 Years of Care, Compassion and Dedication In gratitude and recognition of Dr. Axelrod's remarkable 40 years of service to the FD community, the Dysautonomia Foundation produced a tribute video that was first shown at our Blue Genes event in October 2010. The video features interviews with people with FD and parents of people with FD. Length: 7 minutes - Format: YouTube Get Tested For FD - Carrier Screening Are you at risk for carrying the FD gene? Should you have a simple test and find out? You can avoid having a child with this devastating neurological disease. Watch this video and learn more. Length: 2 minutes - Format: Flash     FD and Foundation Overview - Short Version Meet some extraordinary people with FD, their parents and some of the people, doctors and researchers who are working to help improve the quality of life for all people with FD.  Length: 5 minutes - Format: Flash     FD and Foundation Overview - Long Version  A more in-depth version of the video above. Meet some extraordinary people with FD, their parents and some of the people, doctors and researchers who are working to help improve the quality of life for all people with FD.  Length: 13 minutes - Format: Flash     Faces and Voices of FD - People with FD 2009  Meet children, young adults and adults with FD. Length: 3 minutes - Format: Flash.     FD Parents - FD Parents 2009  Meet parents of children, young adults and adults with FD. Length: 4 minutes - Format: Flash.     FD Doctors and Researchers - FD Doctors 2009  Meet doctors and researchers from the FD Center in New York. Length: 6 minutes - Format: Flash.