Familial Dysautonomia: the leader in FD treatment and research

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  • External News Articles
    • A Pokémon Bar Mitzvah
    • ESPN Feature: The story behind the 'Jack Attack' fantasy football league
    • Rolling with the Punches Podcast: Yehuda Blonder Interview
    • BBC podcast: "How does my mind talk to my body?", with Lucy Norcliffe-Kaufmann
    • Newman Graduates Magna Cum Laude While Battling Rare Genetic Disorder
    • Local family advocates for genetic testing
    • Love, Hate, and fantasy football in the time of coronavirus
    • New City teen with rare disorder will donate gaming system to promote inclusion
    • Boy Aims To Level Playing Field For Disabled
    • Fortnite helps boy with rare genetic disorder
    • Jack Attack - New City boy with rare genetic disease finds ways to live with gusto
    • Box jump challenge launched in memory of Edmonton’s Stevie Schwartzberg

©2018 Dysautonomia Foundation, Inc. | Disclaimer | Privacy Policy | Medical Disclosure
Photos by Rick Guidotti, POSITIVE EXPOSURE
EIN 13-6145280

Website Disclaimer

The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.

Privacy Policy


The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.

Medical Disclosure

The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician. .

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