Familial Dysautonomia: the leader in FD treatment and research
Participate now
in #FDMatch2021!
Click here to read
the Spring Newsletter
The Leader in FD
Treatment and Research
Oxygen Rental Available
The Leader in FD
Treatment and Research
Familial Dysautonomia (FD) is a rare genetic disorder that affects the autonomic, sensory, and peripheral nervous systems. People affected by FD courageously face life-threatening complications every day.
Always Striving to Make Life Better for People Living with FD.
The Familial Dysautonomia Foundation works every day towards our goal of making life better for people living with FD by funding ground-breaking scientific research and medical care.
We help our brave friends affected by FD live their best lives through social services, public education, and advocacy.
Our Impact
We are proud to be the leaders in FD treatment and research.
Over six decades, our major accomplishments include:
-
Funded Research...
that lead to the discovery of the FD gene.
-
Endowed the world’s only...
professorships for FD research and treatment (at NYU School of Medicine).
-
Funded treatment that...
has increased life expectancy of those born with FD from 5 to 40 years.
-
Hosted over...
“FD Day” annual symposiums for affected individuals and their families.
-
Advocated for...
required FD screening for at-risk families through the American Academy of Obstetrics and Gynecology.
-
Established the...
world’s only two treatment centers exclusively for FD care and research.
We Are a Voice for Those Affected By FD
Imagine being disconnected from almost every major function in your body -- from swallowing to breathing to crying.
We want to help people understand the reality that FD-affected individuals experience every day.
