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Familial Dysautonomia (FD) is a rare genetic disorder that affects the autonomic, sensory, and peripheral nervous systems. People affected by FD courageously face life-threatening complications every day.

Always Striving to Make Life Better for People Living with FD.

The Familial Dysautonomia Foundation works every day towards our goal of making life better for people living with FD by funding ground-breaking scientific research and medical care. 

We help our brave friends affected by FD live their best lives through social services, public education, and advocacy. 


Our Impact

We are proud to be the leaders in FD treatment and research.

 Over seven decades, our major accomplishments include:

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    Funded Research...

    that lead to the discovery of the FD gene.

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    Endowed the world’s only...

    professorships for FD research and treatment (at NYU School of Medicine).

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    Funded treatment that...

    has increased life expectancy of those born with FD from 5 to 40 years.

  • 40.png

    Funded treatment that...

    has increased life expectancy of those born with FD from 5 to 40 years.

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    Advocated for...

    required FD screening for at-risk families through the American Academy of Obstetrics and Gynecology.

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    Established the...

    world’s only two treatment centers exclusively for FD care and research.


We Are a Voice for Those Affected By FD

  Imagine being disconnected from almost every major function in your body -- from swallowing to breathing to crying.

We want to help people understand the reality that FD-affected individuals experience every day.

Find out what living with FD is really like.


Help us fight FD and care for our FD-affected friends.

Latest News

Get the latest news about FD care and research.

Equipment Rentals

Learn more about our equipment rentals program.

Upcoming Events

Find out how you can connect.

Join our mailing list

Get the latest on FD research, upcoming events and community news.

©2024 Familial Dysautonomia Foundation, Inc.
| Disclaimer | Privacy Policy | Medical Disclosure

Photos by Rick Guidotti, POSITIVE EXPOSURE EIN 13-6145280

315 W 39th St, Suite 701, New York, NY 10018


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Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.

Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.

If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.

If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.

Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.