Familial Dysautonomia (FD) is a rare genetic disorder that affects the autonomic, sensory, and peripheral nervous systems. People affected by FD courageously face life-threatening complications every day.
The Dysautonomia Foundation works every day towards our goal of making life better for people living with FD by funding ground-breaking scientific research and medical care.
We help our brave friends affected by FD live their best lives through social services, public education, and advocacy.
We are proud to be the leaders in FD treatment and research.
Over six decades, our major accomplishments include:
that lead to the discovery of the FD gene.
professorships for FD research and treatment (at NYU School of Medicine).
has increased life expectancy of those born with FD from 5 to 40 years.
“FD Day” annual symposiums for affected individuals and their families.
required FD screening for at-risk families through the American Academy of Obstetrics and Gynecology.
world’s only two treatment centers exclusively for FD care and research.
Imagine being disconnected from almost every major function in your body -- from swallowing to breathing to crying.
We want to help people understand the reality that FD-affected individuals experience every day.