Familial Dysautonomia (FD) is a rare genetic disorder that affects the autonomic, sensory, and peripheral nervous systems. People affected by FD courageously face life-threatening complications every day.
The Familial Dysautonomia Foundation works every day towards our goal of making life better for people living with FD by funding ground-breaking scientific research and medical care.
We help our brave friends affected by FD live their best lives through social services, public education, and advocacy.
We are proud to be the leaders in FD treatment and research.
Over seven decades, our major accomplishments include:
that lead to the discovery of the FD gene.
professorships for FD research and treatment (at NYU School of Medicine).
has increased life expectancy of those born with FD from 5 to 40 years.
“FD Day” annual symposiums for affected individuals and their families.
required FD screening for at-risk families through the American Academy of Obstetrics and Gynecology.
world’s only two treatment centers exclusively for FD care and research.
Imagine being disconnected from almost every major function in your body -- from swallowing to breathing to crying.
We want to help people understand the reality that FD-affected individuals experience every day.
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.