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The Leader in FD

Treatment and Research

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Oxygen Rental Available

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The Leader in FD

Treatment and Research

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Fall Newsletter

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FD Box Jump Challenge

In Memory of Stevie Schwartzberg

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2022 Annual Journal

Reserve by 1/15/22

Familial Dysautonomia (FD) is a rare genetic disorder that affects the autonomic, sensory, and peripheral nervous systems. People affected by FD courageously face life-threatening complications every day.

Always Striving to Make Life Better for People Living with FD.

The Familial Dysautonomia Foundation works every day towards our goal of making life better for people living with FD by funding ground-breaking scientific research and medical care. 

We help our brave friends affected by FD live their best lives through social services, public education, and advocacy. 


Our Impact

We are proud to be the leaders in FD treatment and research.

 Over six decades, our major accomplishments include:

  • Funded Research...

    that lead to the discovery of the FD gene.

  • Endowed the world’s only...

    professorships for FD research and treatment (at NYU School of Medicine).

  • Funded treatment that...

    has increased life expectancy of those born with FD from 5 to 40 years.

  • Hosted over...

    “FD Day” annual symposiums for affected individuals and their families.

  • Advocated for...

    required FD screening for at-risk families through the American Academy of Obstetrics and Gynecology.

  • Established the...

    world’s only two treatment centers exclusively for FD care and research.


We Are a Voice for Those Affected By FD

  Imagine being disconnected from almost every major function in your body -- from swallowing to breathing to crying.

We want to help people understand the reality that FD-affected individuals experience every day.

Find out what living with FD is really like.



Connect with Us


Help us fight FD and care for our FD-affected friends.

Latest News

Get the latest news about FD care and research.

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