Familial Dysautonomia: the leader in FD treatment and research
We’re proud of our impact
And we’re not done yet.
Donate Online
Click here to make a general donation or to make a gift in honor or in memory of someone
Donate by Check
If you prefer to donate by check, send your contributions to:
Dysautonomia Foundation
315 W 39th St, #701 - New York, NY 10018
Donate Crypto
We accept donations in Bitcoin, Ethereum, and over 40 leading cryptocurrencies.
Make a gift of appreciated stock
This is an excellent tax strategy, as the IRS allows you to deduct the current value of the stock rather than its original cost.
It’s easy too:
- Contact the Foundation at 212-279-1066 or Email to request our DTC account information and to alert us to the transfer.
- Ask your broker to transfer the stock to the Foundation’s account
- Make a gift directly from your IRA
- If you’re age 70 ½ or older, you can make charitable gifts directly from your IRA up to $100,000/year
- Charitable gifts from your IRA count towards your required minimum distribution
- You will not owe taxes on withdrawals that go directly to a charity
- For more info click here or speak with your financial advisor
Estate Planning
Include the FD Foundation in your estate plans and become a member of our Forever Devoted Society. Please call our office for more information. 212.279.1066
Call the Foundation office
We will happily take your credit card information over the phone or provide any additional information you may need in order to make a gift. (212) 279-1066
How to Support
What's Happening Now
Participate in a Fundraising event. The Foundation sponsors a number of special events and initiatives throughout the year. Click here to see what’s happening now. Check back often for the most up-to-date information.
Other Ways to Support the Foundation
Every gift matters. Whether a tribute card or a general donation, the Foundation ensures your donation improves lives every day.
- Make a general donation: Your gift will fund patient care, scientific research and education in support of for those affected by FD.
- Send a tribute card: Make a donation in honor or in memory of someone special. We will send a tribute card to the family.
- Make a gift to our Research Fund: your gift will support clinical and scientific research studies underway, helping to enhance and prolong the lives of those with FD.
- Support the Brenner Biorepository and Database: your gift will fund the Natural History Study, a critical tool for future research on FD.
Get Involved
Make a special day for you a special day for others. Your next birthday, anniversary, Simcha, or milestone event can help patients with FD. Ask your friends to make a gift to the Foundation in your honor.
Is there a Simcha or special event in your life? Ask your friends to make a gift to the Foundation in honor of your birthday, anniversary or other milestone event.
What’s your passion? Spinning? Bowling? Biking? Walking? Marathons? Mah Jongg? Just about any activity can be made into a fundraiser. The Foundation can provide you with the tools and support you need to successfully create your own event to benefit FD
Want to volunteer? Let us know if you’d like to help out in the office or at an event.
Under 40 and related to someone with FD? Join our NextGen group and make a difference. Contact us to learn more
Do you have Bar or Bat Mitzvah coming up? Why not create a mitzvah project to benefit FD--we can help!
Want to do even more? Ask about joining our Board of Directors.
Shop
FD Store: Choose from among a selection of books, music, notecards, art and jewelry. All proceeds benefit the FD Foundation. If you use Amazon, you can shop at AmazonSmile and get the same great prices, even use your Prime account, and 0.5% of your purchase price will be donated to the Familial Dysautonomia Foundation. Cleaning out or adding to your closet? Visit Empathy Mart to donate or purchase gently used clothing and accessories for the benefit of the FD Foundation. Shop online at iGive or use GoodSearch to search the web, and you'll be generating contributions to the Foundation at no cost to you.
©2022 Familial Dysautonomia Foundation, Inc.
| Disclaimer | Privacy Policy | Medical Disclosure
Photos by Rick Guidotti, POSITIVE EXPOSURE
EIN 13-6145280
Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.
Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.
Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.