We’re stronger together.

Come see for yourself.

Get Involved

The Familial Dysautonomia Foundation hosts a variety of events and opportunities to get involved with our organization, meet other families affected by FD, and raise money to support our mission of treatment and research.

Join us!

Upcoming Events

Sep 08

Canada Golf
Sep 8, 2019

On Sunday, September 8, 2019 a golf tournament will be held to honor the memory of Stevie Schwartzberg. 

Sep 23

#FDMatch19
Sep 23, 2019 – Oct 24, 2019

Our 3rd annual crowdfunding match challenge!

Dec 03

Giving Tuesday
Dec 3, 2019

An annual day of giving held the first Tuesday after Thanksgiving.

Dec 05

Americana Manhasset’s 24th annual Champions for Charity® 2019
Dec 5, 2019 – Dec 7, 2019

Shop for the holidays and support FD at Americana Manhasset and Wheatly Plaza on Long Island, NY.

Always Rising Above

Incredible teenagers and adults with FD tell us what it's like to face the challenge of living with familial dysautonomia. 

Stay Informed