We’re stronger together.

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Get Involved

The Familial Dysautonomia Foundation hosts a variety of events and opportunities to get involved with our organization, meet other families affected by FD, and raise money to support our mission of treatment and research.

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Upcoming Events

Jul 29

16th Annual FD Golf Outing - CHICAGO 2019
Jul 29, 2019, 10:30 AM – 6:30 PM

16th Annual FD Golf Outing, Ravinia Green Country Club, Chicago, IL

Always Rising Above

Incredible teenagers and adults with FD tell us what it's like to face the challenge of living with familial dysautonomia. 

Stay Informed