Building healthy lives

and happy futures.

Staff:

Lanie Etkind, Executive Director 

Letkind@familialdysautonomia.org

 

Daniel Carlisto, Development Assistant

dcarlisto@Famdys.org

Officers & Directors

President
Faye Ginsburg

 

Executive Director
Lanie Etkind

 

Vice Presidents
Ed Baranoff 
Jeffrey Goldberger 
Laurent Landau 
Steven Kietz 
Lisa Newman 
Paul Wexler 

 

 

 

Secretary 
Steven S. Fass 

 

Treasurer 
Allan Cohen 

 

Directors 
Gerald Adler 
Jennifer Sonenshein 
Gregg Meyers 
Barbra Waldfogel 
Howard Weiser 


Scientific Advisory Board

Chairperson 
Michael J. Brownstein, MD, PhD 
Scientist Emeritus, NIH  
 
Felicia B. Axelrod, MD 
New York University 
 
C. Wayne Bardin, MD
 Bardin LLC
 
 Joseph Dancis, MD, Hon.
 Honorary Member, Deceased 
 
Robert Gross, PhD
 Honorary Member, Deceased
 


 

 

Adrian Gilbert, PhD
 NeuroDerm
 
 James Gusella, PhD
 Harvard University
 
 Irwin J. Kopin, MD
 National Institutes of Health
 
 Joseph B. Martin, MD, PhD
 Harvard Medical School
 
Eric Schon, PhD 
Columbia University
 
 Gail E. Sonenshein, PhD
 Boston University Medical School 


Dysautonomia Foundation Chapters

Montreal

Israel