Building healthy lives

and happy futures.

Staff:

Lanie Etkind, Executive Director 

letkind@famdys.org

 

Natasha Weinstein, Manager, Development and Foundation Operations
Nweinstein@famdys.org

 

Aaron Breen, Development Assistant
abreen@famdys.org

Officers & Directors

President
Faye Ginsburg

 

Executive Director
Lanie Etkind

 

Vice Presidents
Ed Baranoff 
Jeffrey Goldberger 
Laurent Landau 
Steven Kietz 
Lisa Newman 
Paul Wexler 

 

Secretary 
Steven S. Fass 

 

Treasurer 
Allan Cohen 

 

Directors 
Gerald Adler 
Jennifer Sonenshein 
Gregg Meyers 
Barbra Waldfogel 
Howard Weiser 


Scientific Advisory Board

Chairperson 
Michael J. Brownstein, MD, PhD 
Scientist Emeritus, NIH  
 
Felicia B. Axelrod, MD 
New York University 
 
C. Wayne Bardin, MD
Bardin LLC
 
Joseph Dancis, MD, Hon.
Honorary Member, Deceased 
 
Robert Gross, PhD
Honorary Member, Deceased
 

Adrian Gilbert, PhD
NeuroDerm

James Gusella, PhD
Harvard University
 
Irwin J. Kopin, MD
National Institutes of Health
 
Joseph B. Martin, MD, PhD
Harvard Medical School
 
Eric Schon, PhD 
Columbia University
 
Gail E. Sonenshein, PhD
Boston University Medical School 


Dysautonomia Foundation Chapters

Montreal

Israel