Building healthy lives

and happy futures

Our Leadership


Staff

Lanie Etkind -- Executive Director 

letkind@famdys.org

 

Julia Winer -- Development Operations Associate

jwiner@famdys.org

 


Board

Albulena Prelvukaj -- Director of Communications & Fundraising
aprelvukaj@famdys.org 

 

President

Faye Ginsburg *

 

Vice Presidents

 

Secretary

Steven S. Fass *

 

Treasurer

Allan Cohen ***

 

Ed Baranoff ***

 

Jeffrey Goldberger **

 

Laurent Landau *

 

Steven Kietz **

 

Directors 

 

Lisa Newman *

 

Paul Wexler **

 

Jennifer Sonenshein **

 

Howard Weiser ***

 

Rebecca Sernovitz**

 

Gregg Meyers *

 

Brian E. Stillman ***

 

Gerald Adler *

 

Daniel Landau ***

 


Scientific Advisory Board

Co-Chair

Frances Lefcort, PhD

Montana State University

 

Co-Chair

Adrian Gilbert, PhD

Neuroderm

 

Felicia Axelrod, MD

New York University

 

Bat el Bar Aluma, MD, PhD

Sheba Medical Center, Israel

 

Alejandra Gonzalez-Duarte, MD, PhD

Dysautonomia Center at NYU Langone Health

 

Alex Gileles-Hillel, MD

Hadassah Hebrew University Medical Center

 

Horacio Kaufmann, MD

New York University School of Medicine

 

Adrian Krainer, PhD

Cold Spring Harbor Laboratory

 

Ralph Laufer, PhD

Lysogene, France

 

Eric Schon, PhD

Columbia University

 

Susan Slaugenhaupt, PhD

Massachusetts General Hospital

 

Gail E. Sonenshein, PhD

Tufts University School of Medicine

 


+All board members are independent voting members.

*Term expires 2025

**Term expires 2026

***Term expires 2024

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Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

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Privacy Policy
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Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.