latest news and updates on COVID-19 for the FD community

Building healthy lives

and happy futures.

Staff:

Lanie Etkind -- Executive Director 

letkind@famdys.org

 

Albulena Prelvukaj -- Manager of Fundraising and Communications
aprelvukaj@famdys.org 

 

Erin Duddy -- Development Associate
eduddy@famdys.org 

Officers & Directors+

President
Faye Ginsburg*

 

Vice Presidents
Ed Baranoff ***
Jeffrey Goldberger **
Steven Kietz **

Laurent Landau *
Lisa Newman *
Paul Wexler**

 

Secretary 
Steven S. Fass *

 

Treasurer 
Allan Cohen ***

 

Directors 
Gerald Adler *

Daniel Landau***
Gregg Meyers *

Jennifer Sonenshein **

Brian E. Stillman***
Howard Weiser ***


Scientific Advisory Board

Co-Chairs
Adrian Gilbert, PhD

Neuroderm
 
Frances Lefcort, PhD

Montana State University

 

Members

Felicia Axelrod, MD 
New York University 

 

Bat el Bar Aluma, MD, PhD

Sheba Medical Center, Israel

 

Alex Gileles-Hillel, MD

Hadassah Hebrew University Medical Center

 

Horacio Kaufmann, MD

New York University School of Medicine

 

Adrian Krainer, PhD

Cold Spring Harbor Laboratory

 

Ralph Laufer, PhD

Lysogene, France

 

Adam Sachs, MSE

AstraZeneca


Eric Schon, PhD 
Columbia University

 

Susan Slaugenhaupt, PhD

Massachusetts General Hospital
 
Gail E. Sonenshein, PhD
Tufts University School of Medicine


Dysautonomia Foundation Chapters

Montreal

Israel

United Kingdom

+All board members are independent voting members.

*Term expires 2022

**Term expires 2023

***Term expires 2021

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