Building healthy lives

and happy futures.

Staff:

Lanie Etkind, Executive Director 

letkind@famdys.org

 

Natasha Weinstein, Manager, Development and Foundation Operations
nweinstein@famdys.org

 

Aaron Breen, Development Assistant
abreen@famdys.org

Officers & Directors+

President
Faye Ginsburg*

 

Vice Presidents
Ed Baranoff ***
Jeffrey Goldberger **
Laurent Landau *
Steven Kietz **
Lisa Newman *
Paul Wexler**

 

Secretary 
Steven S. Fass *

 

Treasurer 
Allan Cohen ***

 

Directors 
Gerald Adler *
Jennifer Sonenshein **
Gregg Meyers *
Barbra Waldfogel ***
Howard Weiser ***


Scientific Advisory Board

Chairperson 
Michael J. Brownstein, MD, PhD 
Scientist Emeritus, NIH  
 
Felicia B. Axelrod, MD 
New York University 

 

Adrian Gilbert, PhD
NeuroDerm

James Gusella, PhD
Harvard University

 

Horacio Kaufmann, MD, FAAN

New York University School of Medicine

 

Frances Lefcort, PhD

Montana State University

 

Hilda Maibach, Msc
 
Joseph B. Martin, MD, PhD
Harvard Medical School
 
Eric Schon, PhD 
Columbia University

 

Neal G. Simon, PhD

Lehigh University

 

Susan A. Slaugenhaupt, PhD

Massachusetts General Hospital
 
Gail E. Sonenshein, PhD
Tufts University School of Medicine


Dysautonomia Foundation Chapters

Montreal

Israel

+All board members are independent voting members.

*Term expires 2019

**Term expires 2020

***Term expires 2021

Connect with Us