The Familial Dysautonomia Foundation, Inc. was formed in 1951 by desperate parents searching for a way to help their children living with Familial Dysautonomia (FD). Today, the Foundation works for the benefit of all people afflicted with FD by supporting medical care and scientific research, as well as conducting social service and public awareness programs.
The Familial Dysautonomia Foundation works with the medical community and the government to further the concerns of people with FD. We collaborate with the medical community to educate doctors about FD, and to encourage medical governing bodies to recognize the need to require doctors to inform patients about the existence and risk of FD.
We also provide access to vital medical care and equipment that alleviates the daily struggles of individuals living with this devastating disorder.
We fund research that improves quality of life and life expectancy for people with FD. Researchers are also making cutting-edge strides in the areas of genetic screening and testing in order to find a cure for FD.
The Familial Dysautonomia Foundation seeks to educate both affected families and the broader medical community about FD. We sponsor a variety of programs that include:
*It is the FD Foundation’s policy to pay no indirect or overhead costs as part of grants or gifts made to support FD care or research.