In the 1970s the Foundation was instrumental in establishing the Dysautonomia Center at NYU Langone, now the world’s premier site offering medical treatment for and clinical research on FD. Founded by Dr. Felicia Axelrod, the Center is now headed by Horacio Kaufmann, MD, the world-renowned authority on familial dysautonomia. Staffed by an interdisciplinary team of physicians, nurses, and other professionals, the Center offers stellar medical care, both on-site and virtually through telemedicine; conducts clinical research; consults with patients’ personal physicians and manages the FD Natural History Study.
The Dysautonomia Center offers
The Center has successfully transformed FD from a once fatal childhood disease into a chronic condition. Thanks to advances in care, people with FD who once had a 50% chance of reaching age 5, now have a 75% chance of living to 40 years old.
Stay up to date with the latest from the Dysautonomia Center at NYU by going to: https://dysautonomiacenter.com
530 First Avenue, Suite 9Q, New York, NY, 10016
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
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The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.