Familial Dysautonomia: the leader in FD treatment and research
Commemorating 75 Years of Hope, Progress, and Community
This year marks a remarkable milestone: 75 years of the FD Foundation—and it’s all because of you.
For 75 years, our community has turned hope into action, advancing research, supporting families, and changing what’s possible for those living with Familial Dysautonomia. What began as a small group of determined families has become a global force for progress.
Over these seven and a half decades, your generosity has helped turn hope into progress:
- Specialized medical care through the world’s only dedicated FD treatment centers
- Groundbreaking research, including the discovery of the FD gene and ongoing therapeutic advancements
- Advocacy and education that have transformed awareness, carrier screening, and clinical understanding
- Support for families navigating life with FD
Every milestone achieved has been made possible by a committed community of donors, families, clinicians, and researchers who refused to give up hope.
While we honor how far we’ve come, we are equally focused on the future — expanding care, accelerating research, and improving quality of life for every individual living with FD.
Thank you for standing with the FD Foundation — yesterday, today, and for generations to come.
Stay Tuned for more information about our 75th Anniversary Calendar of events.
©2026 Familial Dysautonomia Foundation, Inc.
| Disclaimer | Privacy Policy | Medical Disclosure
Photos by Rick Guidotti, POSITIVE EXPOSURE EIN 13-6145280
Let's Connect
Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.
Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.
Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.