The Familial Dysautonomia Foundation has Oxlife Independence units for use by FD families while they travel. These deluxe units deliver continuous or pulse oxygen.
To rent a POC unit, you must provide…
· A physician’s travel form and a POC request and agreement form
Arrangements for these POCs should be made well in advance since there are a limited number of machines available. We encourage you to leave ample time for shipping and familiarization as the Foundation does not provide 24/7 customer support, so it is essential that families become familiar with the operation before traveling.
All POCs are battery-operated, and some can be plugged into electrical outlets to simultaneously run the unit and charge the battery. All come with a built-in or detachable cart. With spare batteries, a portable unit can run for many hours without requiring an electrical outlet, but heavy batteries can make travel more difficult.
There are two basic modes of operation for a POC: continuous and pulse. Continuous operation outputs a steady flow of oxygen, whereas pulse operation relies on the patient’s breathing to trigger a burst of oxygen. Some doctors recommend a continuous operation for their patients who are prone to shallow breathing. Check with your doctor to see if you need a model that provides continuous operation. Battery life is much longer in pulse mode.
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Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.