latest news and updates on COVID-19 for the FD community

Latest News and Updates on COVID-19

for the FD Community

May 21, 2020 - FD, COVID and Stress Management

The Dysautonomia Center at NYU Langone published updated tips for FD patients as the COVID-19 pandemic continues. Check out the link above to learn more about continuing necessary precautions and get the latest information on lung health and stress management.

 

May 13, 2020 - Do Jewish Genetic Diseases Increase the Risk of COVID?

In response to the above article, Dr. Horacio Kaufmann, Director of the Dysautonomia Center at NYU Langone, commented, “Congratulations to the FD community for keeping healthy during this health crisis.  We know that the restrictions haven’t been easy on any of you, but please be assured that they are worth the sacrifice.  Your vigilance in following medical advice has prevented what could have been a potential catastrophe for people with FD.  KEEP DOING WHAT YOU’RE DOING!  We will get through this together!”

 

May 4, 2020 - Pulse Oximeters -- the early detection device

We are pleased to share the following article from the 4/20/2020 issue of the New York Times. Many of you already have a pulse oximeter at home -- check out the article by clicking on the link above to learn a new way it might be useful during the coronavirus pandemic.

 

April 28, 2020 - FD, the Eye and COVID-19

With reports emerging about conjunctivitis (pink eye) being a sign of COVID-19, NYU's Dysautonomia Center interviewed Dr. Carlos Mendoza from Bascom Palmer Eye Institute to get his thoughts on FD, the eye and coronavirus. Click on the link above to watch the interview.

 

April 20, 2020 - Employment and Disability Publication from Cornell University

Many in the FD community participate in various types of benefit and entitlement programs. We recognize that this topic is complicated and the programs can vary by each US state and county. Right now, the Federal government is implementing new legislation that changes the rules for these programs and these changes will remain in place as long as the COVID-19 state of emergency continues. We are providing the attached document from Cornell University’s institute on Employment and Disability as a reference for families.  

 

April 16, 2020 - NORD Financial Assistance Program for individuals affected by COVID-19

Please click on the link above to learn more about a financial assistance program for those affected by COVID-19 launched by our colleagues at NORD (National Organization for Rare Disorders). 

 

April 10, 2020 - Telemedicine at the Center

The COVID-19 outbreak has required our community to adapt to an ever-changing landscape and put a strain on hospital resources. The medical team at NYU's Dysautonomia Center is taking on the challenges of the COVID-19 outbreak, while continuing to take care of the issues our FD patients face on a day-to-day basis. Thanks to advancing technology, the Center's team has been able to alleviate some of those strains through telemedicine practices, also known as virtual appointments. 

 

April 9, 2020 - Join our FD Adult "Virtual Happy Hour"

We are all feeling socially isolated during this pandemic! The FD Foundation is planning a weekly “virtual happy hour,” offering an opportunity for you to get together and hangout online with friends near and far. Click here to get more details and to sign-up for future hangouts: bit.ly/fdsupportgroup

 

March 27, 2020 - Update from NYU's Dysautonomia Center

To be sure you are have most up-to-date information and recommendations pertaining to the current outbreak of COVID-19, please click on the link above to view a recent update prepared by NYU's Dysautonomia Center.

 

March 18, 2020 - Social Distancing Tips

Faye Ginsburg, Board President at the FD Foundation, put a lot of thought into keeping her daughter Sam, age 31, as safe as possible. Click on the link above for some of her tips.

 

March 12, 2020 - Update from NYU's Dysautonomia Center

The NYU Dysautonomia Center provides the FD community with an update on the outbreak of the novel Coronavirus. Click on the link above to learn more, including answers to commonly asked questions.

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