The Familial Dysautonomia Foundation will be Forever Grateful to the following individuals who have supported (or intend to support) our mission with a gift from their estate.


*List in formation


Are you 

Make a bequest. Make a difference.


If you have included the FD Foundation in your estate plans please notify us. It would be our privilege to thank you and welcome you as a member of the Forever Devoted Society, which honors friends who are helping to ensure the Foundation's future. All legacy gifts, regardless of size, make a meaningful difference, and we are deeply grateful.



“Making a Planned Gift is like planting a sapling.  You may not be able to enjoy the benefits of yourself, but by planting the tree, you are leaving the world a better place for those who will come after you.”




You, too, can make a charitable planned gift to the FD Foundation. Contact us to learn how.


Consider making a gift through your will, trust, retirement account, or life insurance policy. Your gift today can make a meaningful difference in the future.


Other Ways to Give

Appreciated Stock

If you have stock that has grown in value, you can donate it to the FD Foundation and receive a charitable deduction for the current value as well as eliminate capital gains tax on the appreciation.


IRA, 401K or Other Retirement Plan

When left to individuals orther than a spouse, your retirement plan assets may be subject to taxes. Instead, consider using your retirement plan assets to make gifts to tax-exempt charitable organizations such as the FD Foundation. Alternatively, you can name the Foundation as a partial beneficiary, along with family members, or as a contingent beneficiary.


Life Insurance Policy

You can designate the FD Foundation as a beneficiary, partial beneficiary or residual beneficiary by contacting the administrator of your poluc and requesting a change of beneficiary form, completing the form and returning to the administrator.


Bank Account or Investment Account

Consider naming the FD Foundation as a beneficiary, partial beneficiary or contingent beneficiary of one or more accounts.


IRA Charitable Rollover

Did you know...If you are 70 1/2 years or older, you can give up to $100,000 per year from your IRA directly to a qualified charity such as the FD Foundation without having to pay income tax on the money. This "Rollover" gift can satisfy all or part of your RMD (required minimum distribution).


If you would like more information about making a planned gift to the FD Foundation, please contact Lanie Etkind, Executive Director, at or 212-279-1066.


If you have already made provisions for the FD Foundation in your estate plans, please let us know! We would like to acknowledge your support and welcome you into the Forever Devoted Society.


YOUR WILL: A Reflection Of Your Life

One of the most important legal documents you will ever need is a will. It directs how you wish your assets to be distributed after you've passed away. Just as important, a will is a reflection of your life. It reveals who and what mattered most to you. It's the final gesture by which you will be remembered.


A well-planned will is a gift to your family members, as it relieves them of having to guess your final wishes during their time of grief, and it ensures they are takne care of in the manner you specify. When you provide for an organization like the Familial Dysautonomia Foundation in your will, you also create a legacy of tzedakah and help build a better world through health care, medical research and advocacy for people affected by FD today and in the future.


If you already have a will, make sure it's up to date. Consider reviewing your will following major life events like births, deaths, changes in marital status, etc. Contact your estate planning attorney to make any changes.


Want to add the Familial Dysautonomia Foundation to your existing will? Contact us at (212) 279-1066 or and we will provide you with the recommended language for your attorney.


Helpful Wording

When adding the FD Foundation to your will, living trust or estate plan, please share this suggested language with your attorney:


I give, devise and bequeath the sum of $         or          percent of my estate or specific asset to the Dysautonomia Foundation, Inc. Tax ID # 13-6145280. The Dysautonomia Foundation is a charitable organization located in New York, NY.

The FD Foundation does not provide legal or tax counsel and recommends all charitable giving decisions be made with the advice of tax professionals and legal counsel.

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Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.

Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.

If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.

If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.

Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.