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The Familial Dysautonomia Foundation will be Forever Grateful to the following individuals who have supported (or intend to support) our mission with a gift from their estate.

 

 

Are you 

Make a bequest. Make a difference.

 

If you have included the FD Foundation in your estate plans please notify us. It would be our privilege to thank you and welcome you as a member of the Forever Devoted Society, which honors friends who are helping to ensure the Foundation's future. All legacy gifts, regardless of size, make a meaningful difference, and we are deeply grateful.

 

 

“Making a Planned Gift is like planting a sapling. You may not be able to enjoy the benefits of yourself, but by planting the tree, you are leaving the world a better place for those who will come after you.”

 

 

Invest in the Future Of the Familial Dysautonomia Foundation

We need your help to continue our important work ensuring more and better days for all those affected by FD. Charitable bequests are a great way to give because they are easy to establish, cost you nothing today, and can offer significant tax benefits.

 

Estate gifts have funded research that has led to important break-throughs in our understanding of the FD gene and its effect on people, bringing us closer to our ultimate goal -- a cure for FD.

 

What's Your Legacy?

Join Forever Devoted to:

• Honor or remember a loved one
• Express your appreciation for the life-enhancing work of the FD Foundation
• Ensure continued funding for care and research to support those affected by FD
• Support a cause that is meaningful to you
• Demonstrate your values to those who will follow you

 

Ways To Give

A Bequest In Your Will Or Trust

Simply include language in your will or trust specifying that a gift be made to the FD Foundation as part of your estate plan. Gifts can be designated for a specific purpose, such as research, or can be used as needed to support the ongoing work of the Foundation. You can give a specified amount of money, a percentage of your estate, a residuary or a gift contingent upon certain events. Once you notify the Foundation of your intent to give through a bequest, we will acknowledge you as a member of the Forever Devoted planned giving recognition society.

 

Bank Account, life insurance or Investment Account

Consider naming the FD Foundation as a beneficiary, partial beneficiary or contingent beneficiary of one or more accounts.

 

IRA, 401K or Other Retirement Plan

When left to individuals other than a spouse, your retirement plan assets may be subject to taxes. Instead, consider using your retirement plan assets to make gifts to tax-exempt charitable organizations such as the FD Foundation. Alternatively, you can name the Foundation as a partial beneficiary, along with family members, or as a contingent beneficiary.

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Meet Solange Landau

 

 

Solange’s grandson Sam has FD. Grandmother and grandson live only blocks away from each other in Manhattan, and they enjoy going out on the town together. Solange generously supports the Foundation each year and has arranged for a bequest from her estate that will continue to fund the Foundation’s mission.

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Meet Bea Klier

 

Bea recently celebrated her 108th birthday. Bea’s son Peter, a “math whiz,” had FD when it was still called Riley-Day Syndrome. For a long time, she never had a will, but several years ago Bea met with an attorney to be sure that her assets will someday support the causes that are important to her, including the FD Foundation.

 

 

You, too, can make a charitable planned gift to the FD Foundation. Contact us to learn how or fill out the form.

 

Submit Form

 

 

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YOUR WILL: A Reflection Of Your Life

One of the most important legal documents you will ever need is a will. It directs how you wish your assets to be distributed after you've passed away. Just as important, a will is a reflection of your life. It reveals who and what mattered most to you. It's the final gesture by which you will be remembered.

 

A well-planned will is a gift to your family members, as it relieves them of having to guess your final wishes during their time of grief, and it ensures they are takne care of in the manner you specify. When you provide for an organization like the Familial Dysautonomia Foundation in your will, you also create a legacy of tzedakah and help build a better world through health care, medical research and advocacy for people affected by FD today and in the future.

 

If you already have a will, make sure it's up to date. Consider reviewing your will following major life events like births, deaths, changes in marital status, etc. Contact your estate planning attorney to make any changes.

 

Want to add the Familial Dysautonomia Foundation to your existing will? Contact us at (212) 279-1066 or [email protected] and we will provide you with the recommended language for your attorney.

          

Helpful Wording

When adding the FD Foundation to your will, living trust or estate plan, please share this suggested language with your attorney:

 

I give, devise and bequeath the sum of $         or          percent of my estate or specific asset to the Dysautonomia Foundation, Inc. Tax ID # 13-6145280. The Dysautonomia Foundation is a charitable organization located in New York, NY.