Familial Dysautonomia: the leader in FD treatment and research
Familial Dysautonomia Shop
Art
Swimming Around, by Mara Clawson - $54
Mara has created a limited number of 4” x 4” pieces mounted in acrylic, which add a beautiful touch to any home or office.
3 options: Spring of Sunflowers, Swimming Around, Yochevet B&W
Fair Market Value is $40.
Spring of Sunflowers, by Mara Clawson - $54
Mara has created a limited number of 4” x 4” pieces mounted in acrylic, which add a beautiful touch to any home or office.
3 options: Spring of Sunflowers, Swimming Around, Yochevet B&W
Fair Market Value is $40.
Yochevet B&W, by Mara Clawson - $54
Mara has created a limited number of 4” x 4” pieces mounted in acrylic, which add a beautiful touch to any home or office.
3 options: Spring of Sunflowers, Swimming Around, Yochevet B&W
Fair Market Value is $40.
Media
Steps of Life - Book by Alexia de Gunzburg - $15
Trilogy of short books written and illustrated by Alexia de Gunzburg, with the help of her trusted advisory team. The series outlines her adventures in exploring newfound life after many years of not believing it was possible, due to her FD. Come on a journey with Alexia, live through her eyes and cheer on her Steps of Life.
Fair Market Value is $15
BELIEVE, a CD by Adam Millman CD $18
For his bar mitzvah, Adam Millman, a talented musician, composed and performed an original collection of songs dedicated to his friend Jack, who has FD.
Fair Market Value is $10.
Set of 10 TEARLESS Note Cards
(2 of each image) - $18
Notecards feature the works of five individual artists who have FD and who participated in the TEARLESS exhibition at Allouche Gallery on April 7, 2019. Set of 10 notecards includes 2 of each image:
"Shadow Hands" by Peter Sonenshein
"Enjoying Some Ice Cream" by Mara Clawson
"Ocean" by Alexia de Gunzburg
"Hands" by Keshi Taryan-Kigel
"Sweaty Mess" by Rachael Eisenson
Fair Market Value is $10.
Adventure of Moses - Book by Mara Clawson - $25
Mara is a talented artist and wanted to exhibit her passion through a new medium. That is how the Adventures of Moses came to be. She chose stories from Exodus to illustrate and bring to life through her art. Mara loves to help others learn through pictures.
Fair Market Value is $25.
Never Give Up, Book by Sophie Meyers - Buy on Amazon
Imagine not being able to eat solid food and having reduced sensitivity to pain and temperature. Imagine not being able to cry because your body cannot produce tears, or the challenges in expressing yourself because your body will just not cooperate with your mind.
The following are the unedited thoughts of one very strong and inspirational young woman, Sophie Meyers.
Why Won't Willy Fly? Book by Dr. Felicia Axelrod - Buy on Xlibris
This is a children’s book in verse. It tells the story of a boy named Adam who befriends a baby crow who he names Willy, and then helps him find the courage to fulfill his potential to fly.
Royalties from the book will be donated to the FD Foundation.
Jewelry
Silver Bracelet - $100 $54
BRACELET ON PARACHUTE CORD -- ADJUSTABLE
Renowned jewelry designer Catherine M. Zadeh decided to put her passion to work with the FD Foundation to honor all the children and young adults afflicted with FD. Her mission is that of the FD Foundation, to provide the best possible treatment and research for the benefit of people with FD and to improve the quality of life of adults and children living with this disease. By working together, Catherine and the FD Foundation hope to make an impact in the lives of those living with FD.
Fair Market Value is $100.
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Photos by Rick Guidotti, POSITIVE EXPOSURE EIN 13-6145280
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The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
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Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.