We invite you to participate in the 2023 FD Journal by placing an ad or making a donation.


This year, as you plan your Journal submission, we encourage you to include a tribute to Faye Ginsburg, who recently marked ten years as President of the FD Foundation. During her decade in this role, Faye has guided the Foundation through numerous transitions, developed new partnerships and initiatives and helped ensure the Foundation’s continued viability.


Your Journal contribution will fund medical care at the Dysautonomia Center at NYU, scientific research to identify effective FD treatments and life-enhancing programs and services for people living with familial dysautonomia today.



View last year’s journal at: www.familialdysautonomia.org/2022journal



If you have any questions please contact us at 212-279-1066 or info@famdys.org



All contributions are tax-deductible to the extent permitted by law. The Familial Dysautonomia Foundation is a 501(c)3 non-profit organization. A copy of our latest annual report may be obtained, upon request, from the FD Foundation, 315 W. 39th Street, Suite 701, New York, NY 10018, or from the New York State Attorney General’s Charities Bureau, 28 Liberty Street, 15th Floor, New York, NY 10005.


Connect with Us

©2024 Familial Dysautonomia Foundation, Inc.
| Disclaimer | Privacy Policy | Medical Disclosure

Photos by Rick Guidotti, POSITIVE EXPOSURE EIN 13-6145280

315 W 39th St, Suite 701, New York, NY 10018


Email Us


Let's Connect


NORD_MembershipLogo_PLAT_2024.png   Candid Platinum Transparency 2023. Four-Star Rating Badge - Full Color.png

Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.

Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.

If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.

If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.

Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.