Familial Dysautonomia: the leader in FD treatment and research
ULTRA MARATHON IN SEPTEMBER TO BENEFIT FD
Jake Walker has been involved in sports his entire life and loves to give back. His wife is the first cousin of Josh Kietz, who has FD. As one of seven kids, Jake’s family is “all about helping out whenever we can.” Jake is living proof of this and is now planning his third athletic event to benefit FD.
Inspired by Josh, Jake started with the 4x4x48 at the height of COVID near his home in Charlotte, North Carolina, where he raised $2,500 for FD. “The idea is to run 4 miles every 4 hours for 48 hours straight,” explains Jake. “There’s a guy named David Goggins who is a motivational speaker/author/runner who was a navy seal and he started doing this event for charities and posted about it so I decided to give it a whirl.” After crushing that event, Jake decided to run the NYC marathon, his first ever marathon, for team FD and raised more than $3,000. His third event for FD will take place on September 14 in Belmont, North Carolina, called the Rocky Branch Challenge. In this introductory-level ultra marathon, Jake will run 50 kilometers or 31 miles, and hopes to raise another $2,500 for FD in honor of Josh.
Support Jake Today!
Donate Now
©2025 Familial Dysautonomia Foundation, Inc.
| Disclaimer | Privacy Policy | Medical Disclosure
Photos by Rick Guidotti, POSITIVE EXPOSURE EIN 13-6145280
Let's Connect
Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.
Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.
Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.