#FDMatch22: Our FD Stories Familial Dysautonomia Foundation


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#FDMatch22 Crowdfunding Campaign has a tremendous impact on the FD Foundation and on the community we serve by raising funds to ensure the Foundation’s continued efforts to enhance and extend the lives of people affected by FD.


This year's #FDMatch22 celebrates Our FD Stories, spotlighting individuals and families who are making tremendous strides towards—and benefiting from—the patient care, medical research, and life-enhancing programs and services provided by the Foundation and made possible by YOUR support.




  • Donatemake a general donation or Honor someone you know who has FD


  • Become a Fundraiser: Create an individual page or Build a Team and help us exceed our goal of raising $250,000







*Up to $100,000

In the coming weeks, we will share a series of “FD Stories”, so please continue to check this site to view the latest story and track our fundraising progress!



Our FD Stories

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My FD Story: The Mental Health Counseling Program Changed My Life! by Gabi Jassie

Read the story here

Watch the video here

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My FD Story: Meet Dr. Frances Lefcort, Phd


Read the story Here

Watch the video here


Our FD StoryThanks to the FD Foundation, we are able to experience the joy of being grandparents! by Gerry and Vivian Adler

Read the story here

Watch the video here

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Our FD Story: "The FD Foundation has enabled our family to create priceless travel memories" by Stacey and Adam Sachs

Read Here

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My FD Story: Meet Dr. Alejandra Gonzalez-Duarte

Co-Director, NYU Dysautonomia Center

Read the story here


Our FD Story: "Virtual Check-Ups Changed Everything!Linda & Scott Kutner

Read the story here

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Our FD Story: "We made new friends through FD Hangouts" Jason & Kevin Gross

Read the story here

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©2024 Familial Dysautonomia Foundation, Inc.
| Disclaimer | Privacy Policy | Medical Disclosure

Photos by Rick Guidotti, POSITIVE EXPOSURE EIN 13-6145280

315 W 39th St, Suite 701, New York, NY 10018


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Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.

Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.

If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.

If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.

Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.