Meet Team FD: Brian Levine New York, NY Running for Josh Kietz Chip - Charles Mechler Ashland, MA Running for Justin Sachs Lily Szajnberg Woodside, NY Running for Samantha Myers Jacob Walker Charlotte, NC Running for Josh Kietz Familial Dysautonomia Foundation

TCS New York City Marathon

Sunday, November 6, 2022


Team FD will run 26.2 miles on Nov. 6, 2022, through all five boroughs of New York City to raise funds and awareness for the Familial Dysautonomia (FD) community. It's a day packed with fun, competition, and a giving community spirit. We welcome everyone to run with us to #RunForFD


MeetTeam FD:


To support Brian click here:

To support Chip click here:


To support Lily click here:


To support Jacob click here:


To support Kaia click here:


How Your Support Makes a Difference

Because FD is so rare, the Foundation depends on the generosity of family and friends LIKE YOU who know and love someone living with the disorder.


Your philanthropic support enables the Foundation to fund top-notch medical care at the Dysautonomia Center, invest in cutting-edge scientific research to discover treatments, provide programs and services that enhance quality of life for people who have FD and promote awareness campaigns to ensure that no more babies will be born with FD.


Contact Albulena Prelvukaj at with any questions! 

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Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.

Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.

If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.

If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.

Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.