Familial Dysautonomia: the leader in FD treatment and research
This year the Stillman family home was selected by Phoenix Home & Garden as a VIP stop on its annual self-guided tour of spectacular private homes.
While admiring the unique ambience created by acclaimed interior designer HANK ARENS, visitors to the Stillman’s home can also view and bid on fabulous items featured as part of a SILENT AUCTION to benefit the FAMILIAL DYSAUTONOMIA FOUNDATION. (Remote bidding via the event website is welcome and encouraged as well.)
Hosts Stephanie and Brian Stillman are raising funds and awareness to support the Familial Dysautonomia Foundation, in honor of their daughter Pyper, who was born with this ultra-rare genetic disorder which affects the autonomic and sensory nervous systems.
“Life with familial dysautonomia (FD) is filled with daily challenges, and many normal body functions we take for granted are challenging for Pyper. Thanks to the many advances in medical care, children born with FD today have a 50% chance of living to 40, but our goal is to shatter this expectation and give children with FD a 100% chance of living a full life with minimal complications.” --Stephanie and Brian Stillman
To learn more about Familial Dysautonomia visit https://familialdysautonomia.org/about-fd.
Pyper's Story
Watch the video below to learn more about Pyper Stillman
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Photos by Rick Guidotti, POSITIVE EXPOSURE EIN 13-6145280
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The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
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Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.