Familial Dysautonomia: the leader in FD treatment and research
Thank you for participating in our 4th annual crowdfunding campaign, #FDMatch2020!
Your generous support helped us surpass our original goal, raising more than $234,000 to fund vital programs and services for the FD community, including: top-notch medical care at the Dysautonomia Treatment Center at NYU Langone, cutting edge scientific research, FD awareness campaigns, information on genetic testing and our annual FD Day Conference that brings together our families with medical specialists and researchers to learn about the latest treatments.
Interested in participating as a fundraiser next year in #FDMatch2021? Contact the office to learn more - nweinstein@famdys.org or (212) 279-1066.
Still want to participate? Click here to donate: bit.ly/fdmatch2020
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Photos by Rick Guidotti, POSITIVE EXPOSURE
EIN 13-6145280
Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.
Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.
Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.