Familial Dysautonomia: the leader in FD treatment and research
- Upcoming Events
- Past Events
- 2025 FD Day
- 2025 TD Five Boro Bike Tour
- 2025 FD Journal
- 2025 NYC Half Marathon
- FDMatch24
- TCS NYC Marathon
- FD Day 2024
- Jake Runs for FD
- 27th Annual FD Golf Classic
- 2024 United Airlines NYC Half Marathon
- 2024 FD Journal
- Peter Sonenshein: Emerging Artist
- FDMatch23
- Giving Tuesday 2023
- Champions for Charity® 2023
- 2023 PH&G Home Tour
- 2023 TCS NYC Marathon
- Stevie Schwartzberg Memorial Golf Tournament
- Virtual Trunk Show
- FD Day 2023
- 26th Annual FD Golf Outing
- 2023 United Airlines NYC Half
- 2023 Journal
- Hanukkah Market
- 2022 FD Crowdfunding Campaign
- Phoenix Home & Garden - 2022 Home Tour
- 2022 TCS New York City Marathon
- FD Day 2022
- 25th Annual FD Golf Outing - NY 2022
- 2022 Journal
- Peeper Pyper's Party
- FD Box Jump Challenge
- Champions for Charity
- Giving Tuesday
- #FDMatch2021
- Voice of FD
- FD Day 2021
- NextGen Mixology Class
- 2021 Journal
- Dr. Felicia Axelrod's 80th Birthday Celebration
- JCC Chicago Virtual Screening of Living Art Film
- UniFieD
- Champions for Charity® 2020
- Giving Tuesday 2020
- #FDMatch20
- 2020 FD Ladies Lunch & Play
- FD Day 2020
- #GivingTuesdayNow
- 2020 Journal Appeal
- 2020 United Airlines NYC Half Marathon
- TEARLESS Art Exhibit 2019
- FD Benefit Concert w/ Gavin DeGraw 2017
- Rick Guidotti Positive Exposure Exhibit 2015
Thank you for participating in our 4th annual crowdfunding campaign, #FDMatch2020!
Your generous support helped us surpass our original goal, raising more than $234,000 to fund vital programs and services for the FD community, including: top-notch medical care at the Dysautonomia Treatment Center at NYU Langone, cutting edge scientific research, FD awareness campaigns, information on genetic testing and our annual FD Day Conference that brings together our families with medical specialists and researchers to learn about the latest treatments.
Interested in participating as a fundraiser next year in #FDMatch2021? Contact the office to learn more - nweinstein@famdys.org or (212) 279-1066.
Still want to participate? Click here to donate: bit.ly/fdmatch2020
©2025 Familial Dysautonomia Foundation, Inc.
| Disclaimer | Privacy Policy | Medical Disclosure
Photos by Rick Guidotti, POSITIVE EXPOSURE EIN 13-6145280
Website Disclaimer
The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.
The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.
Privacy Policy
The Familial Dysautonomia Foundation will not share or sell any personal information (name, address, email address, phone numbers) that you submit through this website or offline with any third party organization without your explicit consent.
If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages.
If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.
Medical Disclosure
The FD Foundation does not offer medical advice. We always recommend that you contact the Dysautonomia Center (link here) or your personal physician.