latest news and updates on COVID-19 for the FD community

Patient Focused Drug Development (PFDD) Meeting

The FD Foundation will be leading a Patient Focused Drug Development (PFDD) meeting virtually with the FDA! This will be an opportunity for the FDA to hear the voice of the FD patient and learn about the challenges of living with FD and the critical need for better treatments.


Interested in participating?

On Thursday, July 16 the Foundation hosted an educational webinar for the FD community to learn how you can participate in the PFDD meeting. View the webinar recording and slides by clicking on the buttons below.


Click here to view the webinar



Click here to view the powerpoint



This meeting has been postponed indefinitely.

For more information please contact the FD Foundation at or 212-279-1066.



Click here to learn more about PFDD Meetings

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